Book review

Book Review: The Gilded King By Josie Jaffery

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Published: 25th June 2018

Format: Paperback

Pages: 292

Average Goodreads rating: 4.26★

My Goodreads rating:

Genre: Young Adult: Dystopian, Fantasy

Publisher: Self – Published

Goodreads description: In the Blue, the world’s last city, all is not well.

Julia is stuck within its walls. She serves the nobility from a distance until she meets Lucas, a boy who believes in fairytales that Julia’s world can’t accommodate. The Blue is her prison, not her castle, and she’d escape into the trees if she didn’t know that contamination and death awaited humanity outside.

But not everyone in the Blue is human, and not everyone can be contained.

Beyond the city’s boundaries, in the wild forests of the Red, Cameron has precious little humanity left to lose. As he searches for a lost queen, he finds an enemy rising that he thought long dead. An enemy that the humans have forgotten how to fight.

One way or another, the walls of the Blue are coming down. The only question is what side you’ll be on when they do.

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Firstly, I would like to thank the Author Josie Jaffery for sending me a copy of her book. It has been amazing to read this book and give an honest review, all opinions are my own and are in no way influenced.

When Josie advertised on Twitter that she was looking for book bloggers to review her book. I immediately signed up to participate in this amazing opportunity. Having only book blogging for less than 2 months, this was a perfect! I really enjoying reviewing this book for Josie, and honestly more people need to read this! Can I please read book 2 now?! Before I start my review, let me say that it was not at all what I expected, and I loved it!

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First, let me start by explaining a bit about the book. This book is the first book in the Sovereign Series, a spin off from her other series; Solis Invicti. The Gilded King is dystopian fantasy world about vampires and humans living amongst each other. This dystopian world is split into two categories, The Blue being made up of a social hierarchy and The Red being the outside of this society that is contaminated and fighting for survival, the place no one dares to step out into. The humans amongst the Blue are raised to fear the Red, learning that it will end in their death if they dare to step foot outside of the Blue. However, Julia is sceptical of this taught knowledge, wondering if they are told this to keep them in The Blue to feed the Nobles, also known as the Silvers, aka vampires.

This book is told from two characters perspectives Julia and Cameron. I loved that it was told from two characters perspectives, I felt like I got more out of this story because of this. The only issue I had was towards Julia. She kind of annoyed me a little bit because she is so negative and skeptical of everything, she doesn’t seem like a very fun person to be around. But that is whats expected with the way she was raised. But apart from her constant negativity I loved her! She is at the bottom of the social hierarchy, a slave to the Nobles. Working in the kitchen and the garden with her best friend Claudia. Julia was abandoned as a baby by her parents and thus doesn’t have anyone to turn to for support other than Claudia. However this soon changes when they are assigned attendant positions to two Nobles and their life starts to take a drastic change. Julia begins to form a bond with her Noble, Lucas even though she knows she shouldn’t. Through Lucas’ outlook on life and his behaviour being loving and caring, the complete opposite to the behaviour she is used to seeing from Nobles, Julia begins to believe in fairytales again and learns that there is more going on in The Blue than she is lead to believe.

The book alternates between Julias and Cams perspectives. Cam is a Noble who ventures out into the Red to find someone who is missing, who he believes would not leave The Blue unless she was dead or against her will. While on his adventure he discovers that he does not need to do everything on his own, learning to ask for help while also forming a friendship with someone unexpectedly, taking him by surprise.

Now I am not going to say much more than that, because I do not want to spoil too much of the plot line, but let me just say that I ship Lucas and Julia as well as Cam and his new friend so much! OMG! So the ending that we were given, I was so devastated and screaming that I needed the second book. I woke my partner up at 2am in the morning having to discuss the ending with him because what a cliff hanger! I am still not over that!

I absolutely loved this book! I found it a bit confusing in parts because of some of the unique names and I felt maybe a bit more detail was needed sometimes, but that’s expected from any book, no book is perfect. But this did not stop me from enjoying this book. I was hocked within the first 30 pages! I love a good vampire book, particularly a dystopian. I highly recommend reading this book! do not stress if you haven’t read the first series before reading this one, I haven’t read it yet either. I feel this can be read without reading the other series first, but I am definitely going t be reading Josies first series now as it might give me some more background information to stop some of my confusion that I had in the last 100 pages of this book.

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Do your selves a favour and go check out this book, until then, enjoying this excerpt:

At the very furthest point of the temple, at the end of the double row of pillars that processed towards it, there was a pedestal mounted on a stepped dais. A figure was laid out on top of it. For a moment, Julia froze, thinking it was a real person lying there, slumbering in the temple, but something didn’t fit.

The figure wasn’t breathing. It wasn’t moving at all.

‘Come on,’ Lucas said, leading her down the aisle towards it.

‘Is it a statue?’ she asked.

‘A tomb, really.’

As they walked, he snuffed out the lamps that lined the walls, until finally the only illumination came from the rounded alcove into which the dais rose. It was a bright island in the centre of the darkness, and in the middle of it the statue shone: a man, wearing fine clothing in an unfamiliar style, with a blanket of stone covering his body. His exposed skin was tinged with a sheen of gold that glowed like the walls of the temple.

‘He looks so real,’ she said, reaching out to touch the golden curls that crowned his head. They were slick under her fingers, so intricate they might have been moulded from a real person.

‘They say he was.’

‘You mean this is his coffin?’ The pedestal certainly looked like a tomb. It was wide and deep enough to accommodate a body.

‘No,’ Lucas said, ‘I mean that this is him, that this statue was once alive.’

Julia’s hand had been tracing the lines of the face, but now she snatched it away. ‘You’re not serious.’

‘I am.’

‘This is why you brought me here,’ she said.

‘Of course. You want to hear the fairytale, don’t you?’

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Thanks for reading!

Have you read this book? If so what did you think of this book?

Rose xx

 

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WWW Wednesday #1 – 15th August 2018

So I have seen this going around and thought I would participate in these weekly memes.  WWW Wednesday is hosted by Sam at Taking on a World of Words, for this meme you answer these three quick simple questions:

What are you currently reading?

I am currently reading, Tower of Dawn written by Sarah J Maas. It is book six in the Throne of Glass series.

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What did you recently finish reading?

I recently finished reading Empire of Storms, book 5 in the Throne of Glass series by Sarah J Maas. If you are interested in checking out my book review for this book you can here: Empire of Storms book review.

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What do you think you will read next?

I’m feeling like I want to mix it up a bit with book genres before staring a new series. So I think I will read All the Bright places by Jennifer Niven. I have had this sitting on my book shelf since Zoella introduced it in her book club but I have not had a chance to read it yet. So I’m definitely looking forward to reading this next!

 

What are you currently reading?

Thanks

-Rose xx

Book review

Empire of Storms – Book Review


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  • Published: September 6th 2016
  • Pages: 693
  • Average Goodreads rating: 4.57
  • My Rating: ★★★★★
  • Publisher: Bloomsbury Publisher PLC
  • Genre: Young Adult Fantasy

 

 

 

Hey Everyone!

Hope you are enjoying your week so far! While I am writing this book review for you, it is a Monday afternoon for me, and I have done nothing but binge watch American Horror Story season 1 with my partner and look at book related things on twitter. A well needed lazy day since I am not feeling too well today. My Crohn’s has been affecting me a lot lately, specifically mentally so I have been reading a lot! YAY for reading! 🙂

So over the weekend I finally got to finish Empire of Storms! I have been reading Sarah J. Maas books a lot lately! I am just obsessed with her books! Before starting this series I re-read Sarah’s series: A Court of Thorns and Roses so that I could have a refresher of her new release Novella: A Court of Frost and Starlight. Which I hope to have a review up soon. But after re-reading the series, I continued on with reading Sarah J. Maas and started the Throne of Glass series, (which was before I started this blog) hence why this is my first review. SORRY! I absolutely love Sarah’s writing to the point that I am excited for her final release book but also sad because I do not want it to end!

It took me longer than I had hoped to read this book because I have just been so busy starting back at art school. I had planned to finish this last month (July) but was a week late on that! I’m hoping I can mange my reading a bit better this month! For those who are not aware, Empire of Storms is book 5 in the Throne of Glass series. If you have not read the other books in this series, I am going to try to keep this spoiler free as much as I can!

Before I start, here is the Goodreads description:

‘The long path to the throne has only just begun for Aelin Galathynius as war looms on the horizon. Loyalties have been broken and bought, friends have been lost and gained, and those who possess magic find themselves at odds with those who don’t.

With her heart sworn to the warrior-prince by her side, and her fealty pledged to the people she is determined to save, Aelin will delve into the depths of her power to protect those she loves. But as monsters emerge from the horrors of the past, and dark forces become poised to claim her world, the only chance for salvation will lie in a desperate quest that may mark the end of everything Aelin holds dear.

In this breathtaking fifth installment of the New York Timesbestselling Throne of Glass series, Aelin will have to choose what—and who—to sacrifice if she’s to keep the world of Erilea from breaking apart.’

When I started this book, I did not think that it was going to end with me being an emotional wreck. I have had plenty of books make me cry, but not like this! I loved every minute of this book! I did prefer the second half of the book as it was more action packed and faster paced than the beginning. I grew very attached to shipping SPOILERS*…………… Elide and Lorcan. and obviously Rowan and Aelin. I just think Lorcan and Elide are just beautiful and I am quite sad and frustrated with the ending with this book with the relation to these two.

I am not going to mention what completely and utterly broke me at the end of this book. All I will say is that do not expect a happy ending, expect your heart to be broken into a thousand pieces to the point you are never going to recover from the emotional roller coaster that Sarah is going to put you through. Yes, Sarah’s writing is known to make us very emotional, giving us highs and lows, but in my opinion, this books topped that. I have never read a book that has given me such an emotional break down before and I have read a lot of books!! To read this book, make sure you have tissues, chocolate and someone on standby to hug you and who is prepared to listen to you talk your emotions out because that is the only way you will survive this! (I know dramatic, but its the only way I can explain how emotional this ending is without giving spoilers). I really hope that Kingdom of Ash is not so emotional, people who have read this book will know what I am talking about.

After Queen of Shadows, I came to love Manon Blackbeak as a character and I was so happy to find that in this book she was a main character. I loved hearing her story line and what she had gone through etc. I feel a Novella on her would be absolutely terrific!

I loved Lysandra, she is such a beautiful loving character! I need more of her in this series. Am I the only one that feels this way? There was a section in this book that I absolutely loved involving her, so I am going to share that with you:

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I just loved this, I thought it was beautiful, descriptive and just captured Lysandra at the time. Just beautiful! Do you have any favourite quotes or sections of this book? Please share with me!

The other thing I would like to discuss in relation to this book is, guys, has Dorian become an arrogant pr*ck? Or is it just me? especially with the chapters that involved him and Manon, I just did not like his attitude towards her, especially in those intimate scenes. I just did not like the vibes he gave. I absolutely love Manon, and I felt she deserved better? His attitude came across as if he wanted to ‘own’ her? Maybe that was just me? Please let know what you felt about Dorian in this book, persuade me other wise!!

Thanks for reading!

What have you finished reading recently?

– Rose xx

 

 

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July Book Haul 2018!

Hi everyone!!

Sorry that this post is a bit late in the month. I have been so busy with art school that I just haven’t had time to write this post. Last month I brought more books than I normally do! YAY!!! In total I brought 11 books, so I’m going to introduce the books I brought into categories so here we go:

Hard Covers:



I39099533_525325394556358_2812630892235718656_n brought two hardcovers this month! A Court of Thorns and Roses and A Court of Frost and Starlight written by Sarah J. Maas. I think these covers are just so beautiful! With this being one of my favourite book series I just had to start buying the hard covers since I own all the paperbacks.

For those who haven’t read A Court of Thorns and Roses here is the Goodreads description:

‘Feyre’s survival rests upon her ability to hunt and kill – the forest where she lives is a cold, bleak place in the long winter months. So when she spots a deer in the forest being pursued by a wolf, she cannot resist fighting it for the flesh. But to do so, she must kill the predator and killing something so precious comes at a price …
38949069_216930848977394_2275714556661596160_nDragged to a magical kingdom for the murder of a faerie, Feyre discovers that her captor, his face obscured by a jewelled mask, is hiding far more than his piercing green eyes would suggest. Feyre’s presence at the court is closely guarded, and as she begins to learn why, her feelings for him turn from hostility to passion and the faerie lands become an even more dangerous place. Feyre must fight to break an ancient curse, or she will lose him forever.’

I definitely recommend reading these books if you love a good young adult fantasy series!

New Series I discovered:

There were a few series over June and July that I heard about, which I put on to my TBR/buy list. I was able to buy some of them/finish buying them last month which I was super excited about, but now I need a new book shelf!

  1. Carve the Mark series by Veronica Roth

Book 1: Carve the Mark

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Book 2: Fates divide

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I am super excited to read these books! They sound amazing! I loved Veronica’s Divergent series, I thought her writing was magnificent. So I am super pumped to read this series! Here is the Goodreads description for Carve the Mark, I won’t put in Fates divides description for obvious reasons:

‘Cyra is the sister of the brutal tyrant who rules the Shotet people. Cyra’s currentgift gives her pain and power—something her brother exploits, using her to torture his enemies. But Cyra is much more than just a blade in her brother’s hand: she is resilient, quick on her feet, and smarter than he knows.
Akos is the son of a farmer and an oracle from the frozen nation-planet of Thuvhe. Protected by his unusual currentgift, Akos is generous in spirit, and his loyalty to his family is limitless. Once Akos and his brother are captured by enemy Shotet soldiers, Akos is desperate to get his brother out alive—no matter what the cost.
Then Akos is thrust into Cyra’s world, and the enmity between their countries and families seems insurmountable. Will they help each other to survive, or will they destroy one another?

Carve the Mark is Veronica Roth’s stunning portrayal of the power of friendship—and love—in a galaxy filled with unexpected gifts.’

2. Caraval series by Stephanie Garber

Book 1: Caraval,38935344_251249715496572_2835702546016763904_n.jpg

Book 2: Legendary 

I have heard so many good reviews on this book! I read the Goodreads description and it caught my interest rather fast. I haven’t read it yet but I plan to very soon hopefully!!

Good reads description for Caraval is as follows:

‘Scarlett Dragna has never left the tiny island where she and her sister, Tella, live with their powerful, and cruel, father. Now Scarlett’s father has arranged a marriage for her, and Scarlett thinks her dreams of seeing Caraval—the faraway, once-a-year performance where the audience participates in the show—are over.
But this year, Scarlett’s long-dreamt-of invitation finally arrives. With the help of a mysterious sailor, Tella whisks Scarlett away to the show. Only, as soon as they arrive, Tella is kidnapped by Caraval’s mastermind organizer, Legend. It turns out that this season’s Caraval revolves around Tella, and whoever finds her first is the winner.
Scarlett has been told that everything that happens during Caraval is only an elaborate performance. Nevertheless she becomes enmeshed in a game of love, heartbreak, and magic. And whether Caraval is real or not, Scarlett must find Tella before the five nights of the game are over or a dangerous domino effect of consequences will be set off, and her beloved sister will disappear forever.

Welcome, welcome to Caraval…beware of getting swept too far away.’

Have you read this yet? If so what did you think?

3. Cruel Crown by Victoria Aveyard

I brought this one to add to my Red Queen series which sadly I haven’t read yet either. Here is Goodreads description for it. If you haven’t read the red queen series yet don’t read the description below:

9781409165330.jpgTwo women on either side of the Silver and Red divide tell the stories no one else knows.

Discover the truth of Norta’s bloody past in these two revealing prequels to #1 NEW YORK TIMES bestseller RED QUEEN.

Queen Song

Queen Coriane, first wife of King Tiberias, keeps a secret diary—how else can she ensure that no one at the palace will use her thoughts against her? Coriane recounts her heady courtship with the crown prince, the birth of a new prince, Cal, and the potentially deadly challenges that lie ahead for her in royal life.

Steel Scars

Captain Farley was raised to be strong, but being tasked with planting the seeds of rebellion in Norta is a tougher job than expected. As she travels the land recruiting black market traders, smugglers, and extremists for her first attempt at an attack on the capital, she stumbles upon a connection that may prove to be the key to the entire operation—Mare Barrow.

Favourite series I am buying my own copies of:

38949175_236618266992905_4583938764463669248_n.jpgThere is going to be a few of these on my book haul lists each month. This is because the last nearly 3 years I have been buying my own copies of books I really liked that I read when I was at home. My Mum brought a lot of books, because she is a lot like me; book nerd and loves young adult fantasy books. But because my room was so small, ( I grew up in a family of 7 people) I did not have the room to buy books so I just read my Mums copies. But since moving out of home nearly 3 years ago I have been able to start buying my own copies. Which has been fantastic! Last month the series I finished buying was the Mortal Instruments series written by Cassandra Clare. I absolutely loved this series and thus to finish my collection I got:

Book 2: City of Ashes

Book 3: City of Glass

Book 4: City of Lost Souls

Book 5: City of Heavenly Fire.

These books are a different cover to my other books, but I like having a range of different covers but will be collecting the covers in the original format that my book one and four is in eventually. (yes I’m that weird person that likes having multiple copies of the same book in different covers for my favourite book series) Mortal Instruments just happens to be a favourite of mine. after buying these books my Cassandra Clare collection is complete. Just waiting on the next book to the Dark Artifices collection: Queen of Air and Darkness, which is released in December, which I already have preordered. haha oops!

What books did you buy last month? or if you didn’t buy any, what is a book series you love so much that you have multiple copies of?

Thanks for reading! Hope you are enjoying your Sunday!

Rose xx

 

 

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July TBR

Hi everyone!

I do not have many books on my TBR list for this month, simply because I have been really busy with my health, my art and I start back at art school next week (16th July). So I am trying to keep my list rather simple for this month! I only have three books this month! I am actually really excited to read these books, as I am super pumped for Sarah J maas’s new book in the Throne of Glass series. I am a bit behind in reading the ‘latest’ books, because just like everyone else, life gets in the way and there just is not enough time in the day to get everything done! But here we go!

Book 1: 

The Beasts Heart By Leife Shallcross            ‘My beast’s nose scented cold, and earth, and the faintest tang of magic. Not the same 36969648_495414344232446_7721139755437522944_nmagic that pervaded the house, or even the forest. This was something older and wilder, filled with sadness and decay. Yet at its core was something pure and clear, like the peak of a bell, or the heat of a burning ember. Or the colour f a crimson Rose.’

This book I have already started to read. I am almost half way through. This book is about the classical tale, ‘story as old as time,’ Beauty and the Beast! However, it has an interesting twist to it! It is written from the perspective of the Beast, which I find rather interesting, I do not know of any Beauty and the Beast stories written from the Beasts perspective. If you know of any please let me know!

I was so excited when I heard this book was out because I absolutely love Beauty and the Beast, it is my all time favourite fairy tale! So when I saw it on the shelves in the book store I had to have it. I think the art cover is just beautiful. Absolutely gorgeous!

Book 2:

Empire of Storms by Sarah J. Maas.  36963161_495455124228368_7581535034641743872_n          

Blood will run. Dreams will shatter. An army must rise. The assassin-queen has sworn not to turn her back on her kingdom again. Especially when she might be the only one who can raise an army to keep the Dark King from unleashing his beasts upon them all. But Erawan will wield Aelin’s past, her allies, and her enemies against her. With a powerful court trusting Aelin to lead them and her heart devoted to the warrior-prince at her side, what – or who  – is she willing to sacrifice to spare her world from being torn apart?’  

This is the fifth book in the Throne of Glass series by Sarah J. Maas. I absolutely love her books, and I am so excited to finish reading this! I absolutely love Rowan and Aelin as a couple, I ship them completely. I just can not get enough of them as a couple in these books! I will admit though that even though I love this series, I love Sarah’s A court of thorns and roses book series more. I need more of them in my life! Have you read any of Sarah’s books?

Book 3:

Tower of Dawn by Sarah J. Maas.37004065_495455094228371_6766698018247802880_n

A Glorious empire. A Desperate Quest. An Ancient secret.’

‘Chaol westfall and Nesryn Faliq have arrived in the shining city of Antica to forge an allegiance with the Khan of the Southern Continent, whose vast armies are Erilea’s last hope. But they have also come to Antica for another purpose: to seek healing at the legendary Torre Cesme for the wounds that Chaol received in Rifthold.

After enduring unspeakable horrors as a child, Irene Towers has no desire to help a young lord from Adarlan, let alone heal him. Yet she has sworn an oath to assist those in need – and will honour it. But Lord Westfall carries darkness from his own past, and Irene soon comes to realise it could engulf them both.

And deep in the shadows of distant mountains, where warriors soar on mighty runs, long-awaited answers slumber. Answers that might offer their world a chance at survival – or doom them all.’ 

I’m not going to such much about this one as I said it all above. But I just can’t wait to read this book! Loving this series at the moment!!

 

What is on your TBR list for this month? Do you have many? Any recommendations for my next TBR list?

Thanks for reading!

Rose xx

Crohn's disease

Crohn’s disease – My Story Part 2

Let me share the next part of my story with you.

In my last post I told you that the nurses sent me home telling me to take nurofen for the pain. Now what I did not know at the time, but the nurses definitely should have. Was that nurofen is bad for your organs, it causes inflammation. The fact that my small intestine was already badly inflamed to the point that it was wrapped around my uterus should have been a sure sign to the nurses to tell me not to take nurofen based medication for my pain. Especially since they suspected I had Crohn’s disease.

Not knowing at the time that it was going to make me worse, even though it was helping to manage my pain, I kept taking it. I relied on the nurofen to get me through the day, I was still working 9am-5pm 5/6 days a week. My work colleagues noticed that I was loosing a lot of weight, I was very pale and I looked like crap, to say it politely. I was not well at all. I had to cut back on my hours because my body just could not handle it. I was still battling the pain and the inflammation. I was not eating anything other than a banana a day because I could not handle eating anything else. I was badly fatigued and exhausted. I was so drained. I was starting to feel self conscious about my appearance because every one kept making comments on how I had lost so much weight (I had lost almost 10 kilos in a month) and that I looked really unhealthy. It was not a good time for me, but it was still only the beginning.

On the 20th of December, I had a catch up appointment with the gastro specialists at the local hospital. They told me that they wanted to book me in for an endoscopy and colonoscopy so that they could officially diagnose me with Crohn’s disease and start treatment. My appointment for the camera tests weren’t for another month. So I kept on with the nurofen. I kept losing weight. I kept suffering from severe abdominal pain. Sadly, I had to stop working because my body just could not handle it. It was all getting too much for me. I would have nights where I would be up all night crying my eyes out because I would be in so much pain and I felt that I just couldn’t do it anymore. I would be up at 3am vomiting my guts out because the pain was so severe. I would be sweating so much with high temperatures I would wake up to find my clothes and bed sheets were drenched in sweat, I felt so ashamed, this happened constantly. But my partner did not care. He would help me change the clothes and the bed sheets, completely unfazed by it. I needed help showering, as I could not even get myself in and out of the shower or even get changed with out being in severe pain, I thought I was going to pass out. My heat pack was glued to me, every where I went it went. It was the only thing that would help ease the pain just a little bit. I became to rely on it so much. My partner would be running it back and forth to the microwave for me, even if it was 2am, he was warming it up for me. If it wasn’t for my partner helping me through it, I do not know how I would have done it. It was all too much to go through on my own. I had my parents support, but its a bit different when you live out of home and you don’t have someone there to physically help you through it, I was lucky. I had my partner most days. I never take that for granted, He was my life support so to speak. He was the only one that saw how bad it got for me and he never once judged me for it. As you all know, its never easy having someone judge you or see you differently from being in pain. He did not give me sympathy. He just supported me and did his best to make it more comfortable for me, which was what I needed. I did not need sympathy, I just needed someone to allow me to feel a little bit normal again and not like my life had changed drastically. He gave me that.

Anyway, on the 31st of January I had my appointment at the hospital to have my colonoscopy and endoscopy. Leading up to the appointment I was required not to eat anything but jelly for 4 days. which was not a big deal anyway as I was not eating anything other than a banana most days. For the next 48 hours before the appointment I was not allowed to drink anything other than water and this horrible prep drink. It tastes like sour salt water. It was disgusting. I had to have that twice a day then scull 3 glasses of water after it. Id nearly vomit every time I had to drink it. Almost vomiting over the kitchen sink because it was revolting. For those who do not know, the prep drink cleans out your entire system so that they can get clear camera tests for the endoscopy and colonoscopy. So yes guys, you guessed right, the toilet became my best friend for the next 48 hours. 😦

The day arrived, I was up at 4am to take my last prep drink as required and was on my way to the hospital at 7am. I was so nervous. My partner took the day off work to go with me. The nurses and doctors were so nice, they made me feel so comfortable. They joked around with me as if it was completely normal while they were connecting me to drips and giving me general anaesthetic. I woke up feeling nauseated and slightly disoriented. I was just wanting to see my partner and mum, as I knew my mum would be there by the time I woke up. Once I was more awake they allowed me to go sit in the seating bay where you can relax, wake up a bit more and have something to eat while they monitor you before sending you home. They went to get my partner and mum and the first thing I said was ‘take me home.’ It was 1pm, I just wanted to go home to bed and sleep it off. but I had to wait for the specialist to come talk to me.

The doctor eventually showed up to talk to me so that I could get discharged and go home to bed. I was not expecting to see the images of my camera tests until my next appointment. I was totally unprepared. I did not realise how bad my small intestine was affected. It was covered in blistering ulcers and it was so red and inflamed. He told me that the tests confirmed that I have Crohn’s, quite severe in fact. But we would discuss it more at my next appointment in the specialist clinics.

So I went home, with these images in my hand, not knowing what was going to happen next. All I knew was that my life was about to change drastically after all the talk of treatment, further tests and that it was going to be a long road. I can easily say my mental health did not cope well. But lets be honest, mentally I am still not coping.

The same thing continued the pain, the vomitting etc. you have heard it all before.

On the 28th of February, nearly a month later, I was finally seeing my specialist who told me that even though they got some good solid evidence that I have Crohn’s through the endoscopy and colonoscopy, they wanted an MRI as my small intestine was too inflamed and ulcerated to go as far as they would have liked. They wanted to see how far the disease had spread, so MRI it was.

He started me on a medication called Sulphasalazine, 8 tablets a day, 4 in the morning, 4 at night same time every day with food. He sent me home with the prescription and a form for my MRI and another big blood test. He also told me not to take nurofen, he was very displeased with the nurses for telling me to keep taking it. So I stopped. It was not easy. Panadol did not work as well. I was in agony.

I started the medications on the 29th, only to discover that I was in fact allergic. 5 days in to the treatment I was covered in a rash, vomiting, my abdominal pain was worse. I was so nauseated and dizzy I could not even look at my phone. I had really bad heart burn and I was so tired, I was hardly conscious most of the time. My dad rang the pharmacist that filled out my prescription to find out if I should stop taking the meds or not. The pharmacist said that I am required to keep taking the meds, but to make an appointment with my GP to get put on different meds, but to keep taking it until then.

I made the decision to stop taking it. I didn’t feel right, every time I knew I had to take them again I knew there was something not right, So I stopped. I saw my GP a few days later. She informed me that I did the right thing by not taking them anymore, as I would have ended up in hospital with kidney or liver failure, My body could not handle the sulpha, and I was deadly allergic.

But here is the stupid thing guys. All patients like me, are required to take this medication even though 85% of patients are allergic to the sulpha. It’s a Government Law to put patients on Sulphasalazine first, before placing them on the next medication (mesalazine),  all because mesalazine was on the PBS system (Pharmaceutical benefits scheme) this means that with a health care card you only need to pay $6.40 for it instead of $380. Its the Governments way of trying to protect the damn system. (I can say this because both my GP and specialist said this).

The GP sent me home with this new medication, Mesalazine (thank god I just got my health care card back). She also sent me home with antihistamines and steroids for the next 5 days to fix the problems that the sulphasalazine had caused.

On the 22nd of March sulphasalazine was finally out of my system and the allergy problem was fixed and I was able to start my new treatment of mesalazine. It was allowing me to go about my day, feeling not well, but the pain was bearable enough that I could walk around the house and start doing little things again. It would still take so much out of me. Id have to take naps in the afternoon. If I went out for the day I would have to spend the next day in bed. I was able to consume more food, I was starting to feel ‘normal’, as normal as you can feel with Crohn’s lets be honest.

Little did I know it was actually making my insides worse. But thats a story for next time.

If any of you suffer from crohns or colitis please fell free to message me here or over on my twitter account. Twitter link: https://twitter.com/dreamsanswered_

Thanks for reading

Rose xx

Crohn's disease

Crohn’s disease – My story so Far

I’d like to share my story with you of how I got diagnosed with Crohn’s disease and how my life changed drastically. Now you are probably thinking that the sentence ‘my life changed drastically,’ is a bit dramatic, but it is not. Trust me on this one. For those of you who are reading this and have Crohn’s disease you will know exactly what I mean and will most likely relate to my story.

I have been officially diagnosed with Crohn’s disease for almost 5 months now, 28th February 2018 I got the offical results to say ‘Hey kid, you have Crohn’s disease, have a nice day’.

Before I start sharing my story I should probably let you know what Crohn’s is, for the readers that aren’t sure what this disease is.

What is Crohn’s disease? 

Crohn’s disease is an inflammatory bowel disease (IBD). It is a gastrointestinal disorder. This means that if affects a person’s digestive system and can cause problems in multiple areas of the digestive system. It is a condition in which the person’s intestines become badly inflamed and cause a number of health issues for the person diagnosed.

No one is exactly the same, just like how no one with Crohn’s are the same and it affects everyone differently, hence learning how to manage it, the symptoms and complications can be quite a different experience between patients.

Common Symptoms:

  • Severe abdominal pain
  • weight loss
  • fatigue
  • diarrhoea
  • anaemia
  • low iron levels
  • mouth/throat ulcers
  • loss of appetite

Crohn’s disease is a Chronic disease, this means it is ongoing. however, it can come and go depending on the inflammation of the intestinal tract, i.e. the bowel. There is no cure for Crohn’s disease but there is a term we use called ‘remission’ this is where for periods of time an individual will not experience any pain and bowels will not flare up, through the use of medications if successful.

Treatments:

There is no set treatment for maintaining Crohn’s disease. but there are a few steps that may help make someone’s life more manageable. This is done through using methods that may decrease a patients pain and inflammation. Methods such as:

  • Medications
  • strict diet
  • constant rest
  • surgery

There is just a little bit of information.

Now let me share the beginning of my Crohn’s story with you.

Growing up as a child I always had issues with certain foods, particularly bread. It would always make me feel crampy and very bloated. The doctors constantly put it down to me being possibly gluten intolerant even though all my blood tests came back ‘normal.’ So I just avoided bread and any other food that would upset my tummy. Until 2016 when I moved out of home and my tummy issues got worse. I was constantly running to the bathroom being very unwell. I was loosing so much weight. Every time I went out for a social event people were commenting on how much weight I had lost, asking what diet I was on. Honestly, I was not on any diet. I was eating ‘normally’ but nothing was staying in my tummy for me to gain weight. Causing me to feel so fatigue and weak. I just had no energy. I was sleeping a lot. I would avoid going out in public and eating food because I did not want to risk upsetting my tummy and having to use a public bathroom. I was bruising very easily, my entire body constantly had small bruises from where someone hugged me or even poked me.

My doctor put my issues down to the stress of moving out of home, studying at Uni and being in a stressful relationship at the time. I eventually decided to see a new doctor who ran blood tests to find that my iron levels were severely low, as well as my vitamin B12. I was also very anaemic. She put me on a strict iron diet and iron supplements as well as vitamin B12 tablets to try and boost my levels. 3 months later we did more tests to find nothing had changed at all. So she put me on vitamin b12 injections. 1 every week for 3 weeks, 1 every 3 weeks for 9 weeks and then 1 every 1 for 3 months. We re-tested my levels to find my iron was slowly improving and my vitamin b12 was normal again. The doctor blamed my iron levels on the fact that I had virtually no vitamin B12 so my body could not absorb anything else, hence low iron levels. and she sent me away telling me to see her in another 6 months.

I was still having issues, more and more food was setting me off, making me feel very unwell and ashamed. I went back to the doctor and she tested me for celiac disease. The test came back normal so she sent me home telling me to stay with a strict diet and continue on with my life. Now I was 21/22 at the time I was going to her about these issues. Too young to be staying to a strict diet without knowing what was wrong with my body for it to be causing so many issues for me. But I continued on with my life, trying to deal with it and managing it. I avoided eating food in fear of being unwell. I did not have a supportive partner at the time either and constantly made me feel ashamed for being so unwell all the time. So I had to hide it a lot by not eating as much especially when he was home. I would wait until he was out for the day before I would risk eating food.

In August 2017 I left my partner, and my stress levels went down and my condition improved. I started to think that maybe my doctor was right and that everything was stress related.

I got a job in November 2017, while on uni break. I was loving life, I was working, I was on holiday from uni, it was summer. Everything was perfect. I even met my current partner at the end of November! 🙂

My happiness changed rather fast on the 13th of December. leading up to the 13th of December I was suffering from abdominal pains, but like every female would I just put it down to that time of the month and continued on with my life. By the 12th I could not handle it. I went home early from work because the abdominal pains were so severe I was almost vomiting, I was sweating badly and I just could not sit or stand. I went home to bed and slept it off with pain killers. The next day (13th) I woke up with severe pains that I knew something wasn’t right. My younger brother (who moved in with me after my ex moved out) rushed me to the emergency unit at our local hospital where I was admitted for 2 days. The two days consisted of every nurse and doctor pushing on parts of my abdomen feeling for inflammation asking me ‘does this hurt’. I wanted to punch them all in the face. They told me it was my appendix and they had to rush me to surgery. While preparing me for surgery they did an ultra sound where they found that to my radiologists surprise my small intestine was wrapped around my uterus. My appendix perfectly fine by the way. they discovered sever inflammation of my small bowel and sent me up stairs to the gastro clinic where they did more pushing on my abdomen and admitted me for more tests and observations for the night. I am a stubborn ass, I refused pain meds and help from the nurses. So they sent me home the next day after doing all they could do, making me promise to come back if I had any more issues and that I most likely had Crohn’s disease but the tests would not come back for a week so they could not give me an offical diagnosis. They sent me home with a catch up appointments with their gastro specialists and nurofen to manage my pain.

So home I went. Not realising that it was only the beginning of a long journey.

Thanks for reading

Rose xx